World Thalassemia Day Information

• It is celebrate to increase the awareness about the disease among common public.
• To develop a most effective prevention measure to have control on the disease.
• To motivate and encourage the common public especially youths for the blood donation in order to prevent the people suffering from thalassemia.
• To motivate doctors and other health professionals to take care of the patients especially what they need.
• To promote the people suffering from it to come to the hospital for the early detection, prevention and cure.
• To motivate the youths for the pre-marriage test to get diagnosed about this problem and prevent this disease to get inherited among new generations.
• To make the community, society, nation and world free of thalassemia and other inheritable diseases.
• To give them (people having thalassemia) equal chance of living like a normal and well being person.
• To encourage government organizations to develop more heath care facilities in the vulnerable area.
• To reduce the death rate of people all over the world on international level because of the thalassemia.
• To increase the number of healthy people without thalassemia or other fatal diseases in the country and world.

How World Thalassemia Day Is Celebrated?

World thalassemia day is celebrated by organizing various activities and events in the public places, schools, colleges and other educational institutions to make it more effective. Patients and their families are encouraged to actively take part in the celebration to get all the knowledge about the thalassemia.

The Thalassemia International Federation (TIF), which is a non-profit and non-governmental patient-driven organization, actively involves in organizing the event celebration with its associated associations and members in many countries. World Health Organization and other health bodies all through the focuses on the patients basic rights to encourage more people with thalassemia.

Variety of activities like debates on the health related subjects, discussion over the thalassemia patient’s quality of life including health care services. Posters and banners activities are also done to aware people about this disease.

Varieties of other awareness campaigns are launched by the TIF aiming to spread the information and awareness about hemoglobinopathies, haemoglobin disorders and iron deficiency among common people especially amongst the young people. Educational materials are also distributed to the young students to raise awareness among youths.

Red Day Activities are also organized by the TIF at many places when students wear red T-shirts indicating the cartoon characters of red-blood cells showing the requirement of thalassemic patients.

World Thalassemia Federation:

Thalassemia International Federation is a non-profit and nongovernmental organization having 108 member associations all over the world in 55 countries and officially has relation to the WHO and other major health-related agencies since 1996. TIF is responsible for improving the quality of life, health and the life expectancy of the thalassemic patients and patients with other inherited congenital haemoglobin disorders. It involves in many activities such as:

• It provides supports to other health organizations in increasing the health awareness all though the world.
• It helps in establishing some new health organizations for better health care of the patients.
• It supports and encourages other national health authorities in developing an effective and efficient national health control strategies, prevention measures and clinical management of the disease.
• It organizes educational campaigns for the patients and their families, parents, health specialists, and other medical professionals to raise awareness.
• It organizes local, regional, national and international level conferences, seminars, workshops and campaign of distributing educational materials and books in order to provide up-to-date information to people, web visitors and its members.
• It also helps in promoting the national health control programmes in the European countries.
• Collect and promote the updated and accurate epidemiological data for diseases.
• Create European Reference Centres and collaborative networks between the medical professionals and patients communities.